New Céline Dion documentary offers candid look at singer’s life with stiff person syndrome

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ready is this sound man okay a scene from the documentary I am sind which comes out today on Amazon Prime our own Chief correspondent Adrian Arsenal sat down for her own interview ahead of the documentary’s release we talked about it extensively at that time but this movie takes us into other Realms you hear more about her diagnosis with stiff person syndrome you see her family and friends in her Las Vegas homes and hear from them as well and taken bodat has seen it and she’s with me this morning to tell us all about I am SEL young great to have you in in person today uh so as I mentioned Adrian our chief correspondent she had that exclusive English Canadian interview we learned a lot in it we heard her sing a little bit where does this documentary take us well it takes us into celan’s home so we spend time with her getting physio we spend time with her playing video games with her kids you know we see her in a lot of really vulnerable States so she’s without makeup she’s without fancy clothes she’s in pain and she’s tired and we see her working a really really busy job and and trying to be a mom take a listen I’m working hard every day but I have to admit it’s been a struggle I miss it so much people I miss them if I can’t run I’ll walk if I can’t walk I’ll [Applause] crawl I won’t stop it’s just the emotion and the force you know that desire to get back on stage is that part of what makes this documentary Stand Out stand apart you know I think Cel indon has always been a really sort of candid and authentic person and you feel that throughout the full documentary you know she she made a really really smart choice in this one she talked to the director Irene Taylor Brodsky and she said could we not have a bunch of other people talk about me could I just talk about myself and the director was like okay well that’s a lot to bear that’s a big burden but we’ll try it and it works so well and I think part of the reason the documentary is really effective is because you don’t have a lot of people saying oh cenon’s fantastic she had such an impact you have selenon telling you about her life and you know I I I think the other thing that makes it work well is that she’s not trying to sell you a tour she’s not trying to sell you a book she just wants to tell you where she’s at right now in this journey with stiff person syndrome and it’s it’s interesting uh when you say you know fans of selin who might talk about her in such glowing terms I mean that’s what the fans are going to feel for sure and they’re going to be racing to see this today it’ll be interesting to see the numbers but uh people who aren’t necessarily die hardelin fans is there something for them too for a broader audience yeah you know I I think that whether you you have a degenerative illness like celan’s or whether you have a chronic illness or whether you have a disability it is very rare to see nuanced portrayals of what it’s like to live with an illness or what it’s like to live being sick on a regular basis and there are so many moments in this documentary that people who do live with illness will see and recognize you know she’s an ultra Rich very very famous person but there’s a huge amount of relatability there you know at one point she says I don’t want to leave my house because what if someone sees me looking well and I’ve canceled a tour and I think that that’s very relatable for other people because there are so many expectations we put on people who live with illness you’ll anyone who’s sick understands that that nervousness about what other people will think uh and there are just many many moments like that you know towards the end of the documentary she has a series of spasms she they talk about taking her to the hospital that might be the next step and after she comes out of it she says I’m so embarrassed and you might think you know if you if you’re a healthy person why would you be embarrassed you know you’re sick that’s fine but as someone who lives with an illness that is that is the first emotion that you feel when your body’s not cooperating with you so I think that this type of film making is really important and I I’m really really glad that the documentary filmmaker made it with s so interesting because she talked in the interviews about what it was like to feel those spasms but it sounds like we actually see that in this documentary what she actually deals with and how severe they are yeah yeah and it’s it’s I think it’s important for people to see because a lot of the time those illnesses are invisible and she really shows you what she’s going through

Singer Céline Dion gives fans a behind-the-scenes look at her struggle with stiff person syndrome, and the work she’s been putting into returning to the stage, in the Prime Video documentary I Am: Celine Dion, out today.

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